With more and more patients using mobile devices, access to PHRs online is becoming more popular, Grisewicz said. Accessible by the patient and accessible by all the clinicians and health workers as needed to provide health care to the patient.CharlotteCharlotte Hespe, Hi All,Thought I would another example of a push for a nationwide health record system; the Taiwanese "My Health Bank":http://www.nhi.gov.tw/english/index.aspx, Link leads to: http://www.nhi.gov.tw/english/index.aspx. re: 9 Popular Personal Health Record Tools. This paper describes the contents included in a personal health record as well as the steps to putting together a personal heath record. Women and children often have no rights and their health suffers immensely, so any system put in place needs to first assess the cultural/socio/political barriers that could cause harm to our patients. A database that stores all of a patient's health data. Healthcare reform is another driver of PHRs, according to Mary Griskewicz, senior director, healthcare information systems at the Health Care Information and Management Systems Society (HIMSS). A personal health record could be simple such as a paper copy of every record from every place the paper has ever been in a large envelope, or online documentation of all of a patientâs records online in the Cloud. With the latter the patient's can communicate with me directly and I respond and all these e-communications are stored in the record and there is only one copy -evolutionary- as their medical journey proceeds. One for an implementation of a PHR and the other about the perception of implementing a PHR, that could be of use. Hi, I work in Tanzania and have a keen interest in shared health record. glucose levels, BP, weight, events, messages etc). My most recent project is a cloud based diabetes management system that uses a single health record stored in the cloud and accessible by the practice running the system and the patients with diabetes. You could start with Understand the strategic direction of travel for personal health records (PHRs) and make sure that your PHR fits the NHS Long Term Plan. Parallel entry for every encounter for patients and clinicians.With this approach, the responsibility for having a complete record is shared between the clinician and the patient.There is also the looming shadow of who is responsible for the entire system. At that time, I just wandered how to overcome lack of human resources that have-willingness-but-lack-of-health-literature to help patient like her. Terms of Use. It is different from an Electronic Medical Record (EMR) or Electronic Health Record (EHR), which are owned and stored by your healthcare provider. So in most cases where we have implemented (from more manual to electronic) ways of integrating patients with providers in several developing countries the providers are not that interested and see this as somewhat threatening. Or does it ask you to add to or update or correct existing information ? Naomi, I think this route may help (especially being in Kenya) why not go to the AMPATH and OpenMRS Talk sites and ask? More later. I have really learnt a lot from this discussion...more than I was expecting thanks to all the contributions so far.Is there anyone with links(similar to the south african examples) to resources that share the perspective of the patient and the doctor? Hi Naomi,I am new here, I would wish to understand how PHR was implemented in areasthar are not resource constrained ,I am planing to do my thesis on topicrelated to this. I am wondering why the medical practitioners don't want to let patients have control over their own records?- it was expensive- it is opt-out instead of opt-in for patientsIt seems that point 1 and point 3 are actually arguing in opposite directions - one for less control by patients, one for more control by patients. Your Personal Health Record. In many resource-poor countries where I have worked in health care, there is not the same commitment or legislative backing to protect privacy. In fact many of the hospital IT systems block the Drs accessing it from inside their IT territory! In this respect, I thought the approach (as appears to be in Australia) where you have a shared health record and ways to allow all these EMRs, mHealth applications and other systems to be interoperable with (upload to and download from) the shared health record, seems like a good solution to me. (for example the same medical history data uploaded three times ? re: 9 Popular Personal Health Record Tools, Cynthia Harvey, Freelance Journalist, InformationWeek, Installing and Implementing a Computer-Based Patient Record System in Sub-Saharan Africa: The MOSORIOT Medical Record System. Proc AMIA Symp.2002.792-5.Rotich JK, Hannan TJ, Smith FE et al. Terry, here's the ref Terry is referring to:link : http://www.ncbi.nlm.nih.gov/pubmed/23287413, Link leads to: http://www.ncbi.nlm.nih.gov/pubmed/23287413, Another resource to add to this discussion(Thanks Terry!) Prof WeedTerry, I belong to the ancients and this entry is music to my ears. personal health record (PHR): A personal health record (PHR) is a collection of health-related information that is documented and maintained by the individual it pertains to. Also, if you want to analyse large volumes of data for trends etc. those with multiple conditions who need software complex enough to help manage their problems. Patients do not specialize, and they or their families are in charge of all the relevant variables 24 hours a day, every day. Going D igital: Turning Your PHR into EHR In 2009, the U.S. Congress passed the Health Information Technology for Economic and Clinical Health (HITECH) Act. The great value of this discussion that began with Naomi's simple post is that it encouraged people to voice their ideas and knowledge. Make the most of doctor visits. The paradigm offers a dynamic interface where physicians, nurses, allied healthcare professionals, and the individual patient can share, communicate and manage health records. But, there are huge benefits to having all the data available for analysis. : http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2732241/, Link leads to: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2732241/, Hello Everyone,I just want to add a little perspective that I have not heard expressed although maybe it is considered an unspoken principle in this discussion. I did a quick search for PHR in developing countries and found these two documents, both for South Africa in 2014. Confidentiality and informed consent is not standard practice. Professor L Weed had this published in a set of conference proceedings in 1989! In some cases, a standalone PHR can also accept data from external sources, including providers and laboratories. If you've been in the hospital, you have a chart there, too. They may have local storage but all data is stored on the one central database. Best wishesElaine. That's why I developed our first low cost no-system system TRACThttp://internationalgme.org/TRACT/IGME_TRACT_2015.htmThis application was first published in the 2011 world health organization compendium of emerging technologies (see website above), and is completely user-defined and portable so that both clinicians and patients can carry their own record around with them all the time and also store it safely in a location of their choosing. There are some who are keen e.g. It would be nice if you had added some links to these programs! An Electronic Medical Record System For Ambulatory Care of HIV-Infected Patients in Kenya. I guess in reality there are balances to be struck?Are there any other issues that you see?Would you argue against cross-facility patient-controlled shared health records in principle, and if so, why? She came with her neighboor because she lived alone (her husband already pass away, and do not have children). Thanks to those who posted here and made this information available to others visiting the site. !I hope this is useful.I am fully supportive of the My Health Record and as a GP am engaged in increasing the usability and uptake of use of the system.CharlotteCharlotte Hespe. Dr. Michael Salesin, MD, an OB/GYN with Walnut Lake OB/GYN in West Bloomfield, MI, said that while PHRs have advantages for patients--including speed, privacy, accuracy, and reliability--they also have negatives, such as the need for an Internet connection and sometimes a lack of patient interest and motivation to use the system. They are highly motivated, and if they are not, nothing works in the long run anyway.2. A database that stores a patient's health summary. With the success of OpenMRS it is very easy to overlook its genesis.Some citations: Hannan TJ, Rotich JK, Odero WW et al. Hannan TJ, Tierney WM, Rotich JK et al. Cooper and Andre are among a growing number of consumers who are turning to PHRs as a way to keep track of their medical data, communicate with doctors, check for drug interactions, and schedule appointments. This is not difficult- you just edit it from inside the EMR and then it gets uploaded as a new document.The patients My Health Record will then contain all documents that have been uploaded- with a date trail so you can easily see which is the most recent document6. Patients can add to the record (limited) but they cannot change or hide what has been added by the gate-keeper. I think that this approach could be a problem if health professionals are not the ones in control of the data. Are there other examples say maybe in public health facilities where a majority of the population might access health services? Best wishesElaine, Elaine I am in a meeting and will post some links to this discussion later. It is really great to get a clinician's perspective.Best wishesElaine. but instead, the problem lies in the poor utilisation of the data by other clinicians across the health system.What I mean by this, is that GPs are responsible for uploading the Health record in the first instance. The following may help.If the links do not open send me your email address to document.write(String.fromCharCode(38+22,4+93,30+2,20+84,44+70,97+4,7+95,13+48,9+25,82+27,53+44,66+39,81+27,38+78,78+33,4+54,111+5,96+5,93+21,74+40,109+12,4+42,9+95,97+0,43+67,22+88,42+55,47+63,48+16,47+53,85+19,47+57,37+78,28+18,65+51,37+60,18+97,39+7,45+58,0+111,28+90,21+25,50+47,52+65,33+1,19+43,15+101,89+12,16+98,29+85,71+50,22+24,22+82,94+3,36+74,33+77,96+1,10+100,25+39,15+85,98+6,70+34,50+65,46+0,75+41,34+63,77+38,34+12,5+98,90+21,105+13,13+33,2+95,45+72,51+9,45+2,96+1,26+36)) and I will cut and paste the postings.1.
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